1. Who We Are

Welcome to Glioblastoma Support. Our website address is https://glioblastomasupport.org. We are dedicated to providing support and resources for patients diagnosed with glioblastoma and their families.

2. Personal Data We Collect and Why We Collect It

2.1. Comments

When visitors leave comments on our site, we collect the data shown in the comments form, the visitor’s IP address, and browser user agent string to help with spam detection. An anonymized string created from your email address (a hash) may be provided to the Gravatar service to check if you are using it. The Gravatar service privacy policy is available here. After approval of your comment, your profile picture is visible to the public in the context of your comment.

2.2. Media

If you upload images to our website, please avoid uploading images with embedded location data (EXIF GPS). Visitors to the website can download and extract any location data from images on the website.

2.3. Contact Forms

Information submitted through contact forms on our site is used for customer service purposes and will not be used for marketing purposes without explicit consent.

3. Cookies

3.1. Comments

If you leave a comment on our site, you may opt-in to saving your name, email address, and website in cookies. These are for your convenience so you do not have to fill in your details again when you leave another comment. These cookies will last for one year.

3.2. Account and Login

If you have an account and log in to this site, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser. When you log in, we will also set up several cookies to save your login information and screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me,” your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

3.3. Article Editing and Publishing

If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after one day.

3.4. GDPR Compliance

We use cookies in compliance with the General Data Protection Regulation (GDPR). When you first visit our site, you will see a cookie consent banner where you can manage your cookie preferences. You have the right to withdraw consent at any time by adjusting your browser settings or using the cookie consent tool.

4. Embedded Content from Other Websites

Articles on this site may include embedded content (e.g., videos, images, articles, etc.). Embedded content from other websites behaves in the same way as if the visitor has visited the other website. These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.

5. Analytics

We use third-party analytics services to collect and analyze information about the use of our site. These services may use cookies and other tracking technologies to collect information about your use of the site and your activities across different websites and online services.

6. Who We Share Your Data With

We do not share your personal data with third parties except as necessary to provide our services, comply with the law, or protect our rights. Visitor comments may be checked through an automated spam detection service.

7. How Long We Retain Your Data

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue. For users that register on our website, we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.

8. What Rights You Have Over Your Data

If you have an account on this site or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you, excluding any data we are obliged to keep for administrative, legal, or security purposes. To make such requests, please contact us at support@glioblastomasupport.org.

9. Where We Send Your Data

Visitor comments may be checked through an automated spam detection service.

10. Additional Information

10.1. How We Protect Your Data

We take the security of your personal data seriously and implement appropriate technical and organizational measures to protect it against unauthorized or unlawful processing, accidental loss, destruction, or damage.

10.2. Data Breach Procedures

In the event of a data breach, we will notify affected users and the relevant authorities within the timeframe required by applicable laws.

10.3. Third Parties We Receive Data From

We may receive data about you from third-party services such as analytics providers, advertising networks, and search information providers.

10.4. Automated Decision Making and/or Profiling

We do not engage in automated decision making or profiling with user data.

10.5. Industry Regulatory Disclosure Requirements

We comply with all relevant industry regulations and legal requirements concerning the collection, use, and retention of personal data.

11. Your Contact Information and Consent

If you have any questions or concerns about this privacy policy or how we handle your data, please contact us at support@glioblastomasupport.org. By using our site, you acknowledge that you have read and understood this privacy policy and agree to its terms. If you need any clarification or have any concerns, feel free to reach out to us.

This privacy policy was last updated on 20 May 2024. Please review it periodically for any updates or changes.