Inspired by her own loss, Addison woman leads network to support those battling Glioblastoma, Watch the interview here. Giving Back. “Sometimes knowing that, you know, somebody is still caring for the caretakers and thinking about us… Just sending that package (Caregiver Kits), and just saying, ‘We’re thinking about you and these are some things that hopefully will help you in…
We will never know what is next. Sometimes some things come into our life so suddenly, it takes you by surprise. by love or by fear, and changes your life for forever. While I am not great at expressing thoughts on paper. I am giving words to my experiences and my journey. My name is Neha. I am a hardworking,…
Watch the VLOG from our Vice President Dedee Culley, RN from Two Leaf Nurses.
Tools for the Caregiver As a caregiver trainer/coach, an Adult Planning Specialist, and as an End of Life Doula, her training and life experiences with both her parent’s and husband’s illnesses and passing help others navigate the crazy, complicated medical world we live in. She is also the creator of The Resilient Caregiver’s Lifeline program. Watch Darcy’s interview with the Glioblastoma…
Hello all. I am new to this Glioblastoma Support Network so first up I would like to introduce myself. My name is Julian Axon (Jules to my friends) and I am 66 years old, born and raised in England before moving here to Port Elizabeth, South Africa in 1975 at age 21. I worked for General Motors, South Africa for…
SELFCARE Caregiving can be physically and emotionally exhausting. Whether you are in the profession of caregiving or taking care of a loved one, it is important to remember to recharge your batteries. For family members, caregiving can also lead to additional pressures, such as financial strain, family conflict, and social withdrawal. Over time, caregiver stress can lead to burnout, a…
Written by Barbara Marcus, Occupational Therapist As a caregiver to someone with GBM the multitude of tasks can be physically, emotionally, socially, and financially demanding. Caregivers are challenged to solve problems and make decisions as care needs change with the progression of the disease. As an Occupational Therapist, I was able to navigate these changes and make adaptations for my…
My name is Courtney. I am an internal medicine physician living with malignant brain cancer. I started this blog the day I diagnosed myself with a brain tumor in Thailand in January of 2020. Honestly, the story only gets crazier from there. The words in this blog are honest, intimate stories of my real-life journey to find happiness, joy, and…
Author: Dedee Cully, RN , Cannabis Nurse It is hard enough coming to terms with GBM and the devastating prognosis for patients and families, but when this news is coupled with the discovery that something (in this case medical marijuana) that might be helpful is not legal in your state, it is an even greater blow to the hope we…
