Receiving a terminal diagnosis can be frightening and overwhelming, especially when you or a loved one are searching for end-of-life resources. You don’t need to go through this difficult time alone. One of the best ways to find support is through an end-of-life doula. What is a death doula? Many patients and their families have never heard about this valuable…
We will never know what is next. Sometimes some things come into our life so suddenly, it takes you by surprise. by love or by fear, and changes your life for forever. While I am not great at expressing thoughts on paper. I am giving words to my experiences and my journey. My name is Neha. I am a hardworking,…
Press Release GSN receives donation. FOR IMMEDIATE RELEASE Las Vegas, Nevada (Friday, May 21, 2021) The Glioblastoma Support Network, a non-profit, is pleased to announce they have received a $1,000 donation from the Cape Coral Florida Fraternal Order of Eagles. The Glioblastoma Support Network’s mission is to provide a one-stop online resource for health care partners, and caregivers of…
Watch the VLOG from our Vice President Dedee Culley, RN from Two Leaf Nurses.
By Arlynn Krauss, Esq My Scan is Clear But My Clinical Signs Are Declining. WARNING: If you are desiring to see only positive information regarding this subject matter, please do not read below. This is a realistic summary of a common and confusing situation. If you prefer to hold hope, which is completely understandable, do not read further. The situation…
Tools for the Caregiver As a caregiver trainer/coach, an Adult Planning Specialist, and as an End of Life Doula, her training and life experiences with both her parent’s and husband’s illnesses and passing help others navigate the crazy, complicated medical world we live in. She is also the creator of The Resilient Caregiver’s Lifeline program. Watch Darcy’s interview with the Glioblastoma…
Hello all. I am new to this Glioblastoma Support Network so first up I would like to introduce myself. My name is Julian Axon (Jules to my friends) and I am 66 years old, born and raised in England before moving here to Port Elizabeth, South Africa in 1975 at age 21. I worked for General Motors, South Africa for…
By Kim Peterson, Owner of Gem Chain Bar When you have a diagnosis of Glioblastoma, you were probably told to do to apply for SSDI as well as so many other tasks. This article is meant to provide you with information and a resource to apply for SSDI. Even the savviest are challenged with getting this application in and approved.…
Written by Barbara Marcus, Occupational Therapist As a caregiver to someone with GBM the multitude of tasks can be physically, emotionally, socially, and financially demanding. Caregivers are challenged to solve problems and make decisions as care needs change with the progression of the disease. As an Occupational Therapist, I was able to navigate these changes and make adaptations for my…
