Receiving a terminal diagnosis can be frightening and overwhelming, especially when you or a loved one are searching for end-of-life resources. You don’t need to go through this difficult time alone. One of the best ways to find support is through an end-of-life doula. What is a death doula? Many patients and their families have never heard about this valuable…
We will never know what is next. Sometimes some things come into our life so suddenly, it takes you by surprise. by love or by fear, and changes your life for forever. While I am not great at expressing thoughts on paper. I am giving words to my experiences and my journey. My name is Neha. I am a hardworking,…
Watch the VLOG from our Vice President Dedee Culley, RN from Two Leaf Nurses.
By Arlynn Krauss, Esq My Scan is Clear But My Clinical Signs Are Declining. WARNING: If you are desiring to see only positive information regarding this subject matter, please do not read below. This is a realistic summary of a common and confusing situation. If you prefer to hold hope, which is completely understandable, do not read further. The situation…
Hello all. I am new to this Glioblastoma Support Network so first up I would like to introduce myself. My name is Julian Axon (Jules to my friends) and I am 66 years old, born and raised in England before moving here to Port Elizabeth, South Africa in 1975 at age 21. I worked for General Motors, South Africa for…
Written by Barbara Marcus, Occupational Therapist As a caregiver to someone with GBM the multitude of tasks can be physically, emotionally, socially, and financially demanding. Caregivers are challenged to solve problems and make decisions as care needs change with the progression of the disease. As an Occupational Therapist, I was able to navigate these changes and make adaptations for my…
My name is Courtney. I am an internal medicine physician living with malignant brain cancer. I started this blog the day I diagnosed myself with a brain tumor in Thailand in January of 2020. Honestly, the story only gets crazier from there. The words in this blog are honest, intimate stories of my real-life journey to find happiness, joy, and…
Occupational therapy seeks to help patients and their families navigate these major life changes and restore life balance
