By Arlynn Krauss, Esq My Scan is Clear But My Clinical Signs Are Declining. WARNING: If you are desiring to see only positive information regarding this subject matter, please do not read below. This is a realistic summary of a common and confusing situation. If you prefer to hold hope, which is completely understandable, do not read further. The situation…
Tools for the Caregiver As a caregiver trainer/coach, an Adult Planning Specialist, and as an End of Life Doula, her training and life experiences with both her parent’s and husband’s illnesses and passing help others navigate the crazy, complicated medical world we live in. She is also the creator of The Resilient Caregiver’s Lifeline program. Watch Darcy’s interview with the Glioblastoma…
Hello all. I am new to this Glioblastoma Support Network so first up I would like to introduce myself. My name is Julian Axon (Jules to my friends) and I am 66 years old, born and raised in England before moving here to Port Elizabeth, South Africa in 1975 at age 21. I worked for General Motors, South Africa for…
SELFCARE Caregiving can be physically and emotionally exhausting. Whether you are in the profession of caregiving or taking care of a loved one, it is important to remember to recharge your batteries. For family members, caregiving can also lead to additional pressures, such as financial strain, family conflict, and social withdrawal. Over time, caregiver stress can lead to burnout, a…
By Kim Peterson, Owner of Gem Chain Bar When you have a diagnosis of Glioblastoma, you were probably told to do to apply for SSDI as well as so many other tasks. This article is meant to provide you with information and a resource to apply for SSDI. Even the savviest are challenged with getting this application in and approved.…
Written by Barbara Marcus, Occupational Therapist As a caregiver to someone with GBM the multitude of tasks can be physically, emotionally, socially, and financially demanding. Caregivers are challenged to solve problems and make decisions as care needs change with the progression of the disease. As an Occupational Therapist, I was able to navigate these changes and make adaptations for my…
My name is Courtney. I am an internal medicine physician living with malignant brain cancer. I started this blog the day I diagnosed myself with a brain tumor in Thailand in January of 2020. Honestly, the story only gets crazier from there. The words in this blog are honest, intimate stories of my real-life journey to find happiness, joy, and…
Author: Dedee Cully, RN , Cannabis Nurse It is hard enough coming to terms with GBM and the devastating prognosis for patients and families, but when this news is coupled with the discovery that something (in this case medical marijuana) that might be helpful is not legal in your state, it is an even greater blow to the hope we…
Occupational therapy seeks to help patients and their families navigate these major life changes and restore life balance
Author: Jared Nelson, MD Radiology imaging is essential in the diagnosis, treatment, and surveillance for patients with masses, especially glioblastomas. While useful in so many other areas, x-ray and ultrasound have no significant role to play in glioblastoma imaging. Computed Tomography (CT) imaging is often the first imaging tool used to first diagnose and intracranial mass, look for mass effect,…
